Feeds:
Posts
Comments

Posts Tagged ‘research’

Although I seldom use this blog to post resources, there being sites that do that so much more thoroughly than I could, I thought I should offer these especially as the format is video and some of us have difficulty with too much text on a screen.

I’m adding them to the permanent links on the right of this page.  If anyone finds that links I’ve put in this blog cease to work or are somehow inappropriate, please leave me a message so I can review the link in question. 

I know that there is a great deal of controversy, upset, even fury in the patient (what a word!) community about this or that doctor, this or that organization but this blog will not be used to further that; I merely offer a resource.  I, too, have experienced the fear, the frustration, the upset, the longing for treatment that would give me a normal life.  I have experienced humiliation at the hands of those sworn to be compassionate healers.  I, too, detest the name which trivializes that with which I must live.  I get it.  I just won’t argue about it.

For the newly diagnosed who may be reading this, please know that odds are with you – you are very likely to improve as time goes forward!   Never let me, anyone else, or any resource overcome hope!  Life can be very, very sweet even when it takes a sharp turn into uncharted territory.

I am not affiliated with any group regarding this disease, nor do I offer advice about what will or won’t work for you.   I wish I had the answers.   My personal approach is to stay informed but keep my focus on pursuing my life as it is now.  These links are offered in that spirit.

Here are the new links:

http://www.youtube.com/user/SolveCFS

http://www.youtube.com/watch?v=Riybtt6SChU&list=FLzrFQHNiCc_6AMpw_GpWZOA&index=5&feature=plpp_video

Peace.

Advertisements

Read Full Post »

Published by The Journal of Internal Medicine and reported by Kim McCleary (click on any part of this sentence.)

Though it is not the norm for me to involve this blog with research items, sometimes it’s important to help get information to those who might not otherwise find it.

As for my personal situation – I meet all criteria for this definition of ME. Though I can’t say I’m fond of the acronym, perhaps it will be a step forward.

May we all thrive, whatever the label.

Peace.

Read Full Post »