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Lately I’ve been getting slammed more than usual by this disease.  I’m fairly sure there’s no pain in my eyelashes ;) but the level of pain, exhaustion, immune system uproar, migraine attacks and other neurological nasties have left me breathless – oh, wait, that’s the asthma kicking in.

 

I’d say I don’t mean to complain, but I suppose that’s not entirely true, I’m SICK of this!

 

Whew, that felt good and yes, I see the pun :)

 

I’ve smiled my way through several important events that brought me great joy even as I knew I was getting much worse.  Balance, it always comes back to that.  Now it is time to begin to tip the scale back to where I do best – living each moment in quiet spontaneity.   Healthy or not, it only makes sense; we are not promised a next moment and, while reflection on the past can be fruitful, moments in the past are gone – we have only this moment.

 

Okay, I’ll admit, that even at the least demanding of times, it’s not completely possible to be without thought of the next moment, the chore that can’t wait any longer, the appointment that must be made and kept, the commitment to my spirituality that strengthens me in every way, but the more I can build that quiet spontaneity into my life, the better I do.  Yes, it takes a conscious effort to choose – to build – that peaceful place, to recognize an opportunity; even the busiest lives have them.

 

Yesterday was one of those precious spontaneous days. 

 

My husband asked me what I was going to do with my day.  I smiled and recited one of our family jokes, “I don’t make plans that far in advance.”  I asked him what he was going to do and he said he might cut the grass.  Now, the last time he cut the grass I’d compromised but this time I knew I desperately needed the quiet and that lawnmower makes me feel driven as I try to escape the noise and the allergens.  We have a small parcel of land here, so cutting the grass takes several hours on a riding mower.

 

So, I did the unthinkable; I asked for what I desperately needed.

 

Luckily, my always-has-to-be-busy husband is also very good to me so he agreed to find something else to do and joked about someone calling the Grass Police.  (We live in a semi-rural area, I’m not sure anyone would do anything about it if we let the whole place go wild.)  So I looked forward to my quiet and a day with absolutely no obligation other than the times of prayer in which I find peace and solace. (See the Divine Office link to the right of this page if curious.)

 

After a morning spent “going slow” as I think of it, I was finally dressed and ready to spend some time on the screened-in porch.  I set my favorite pillow on the lounge chair and stretched out; I read for a time, I listened to the birds and thought about what I’d read.   Just being able to do that – retain what I’d read long enough to think about it – was huge!

 

When 3pm came, I went upstairs to pray Midafternoon Prayer as is my custom, and came back to the lounge chair.  Then the weeds began to call.

 

They did.  Honest!

 

Several years ago, my husband built a two-tiered flowerbed just outside the screened porch.  Don’t ever let anyone tell you that you can contain the growth of mint if you plant it inside a pot in your garden!  I think I’ll be pulling it out for the rest of my life and much as I like mint, well, email me if you ever need some ;)  

 

So, the mint and friends were calling and I, in that moment, felt I could clear a little section.  With my cane for balance and my trusty trowel, out I went.  After a couple of minutes, the lessons began to form.

 

I set my sights on clearing every weed from the midst of an Autumn Joy sedum that has gotten quite full and lovely.  Just that spot, I thought, let me get that one spot completely cleared.  I began with a few inches leading up to the sedum when the first lesson came.

 

My husband and I had done this already earlier this spring.

 

What we had not done was put something in the place of the weeds.  Pull something unwanted out, the careful gardener puts in something that is wanted – lest the weeds grow back.  Clear a space within myself, something better needs to take its place lest I end up back where I began or worse, grow an even bigger crop of weeds.

 

I moved forward, still determined to perfect that one little area.   I began to work on my lovely plant, carefully separating the sedum stalks to follow the weed to the roots when the second lesson came.

 

No matter how carefully I pull out the roots, I can never get every last little strand; the weed will grow back eventually without vigilance.  What progress I make must be carefully watched and nurtured.

 

I moved to the other side of the plant, having cleared the front and looked back.  Wait just a minute!  I just cleared that!  I’d swear there wasn’t a single weed left in the front half when I moved to the back!  But there they were, waving merrily in the wind, weeds I hadn’t seen though I’d thought I looked so carefully.  I’d felt pretty proud of myself for my thoroughness and yet I completely overlooked these taunting flags!  Therein lay the third lesson of the weeds. 

 

The weeds in me require my vigilance, my effort, my patience, and my perseverance but I will never clear my garden of weeds.  There is only one Gardener who is able to see and completely root out each weed and it isn’t me! 

 

Peace.

 

Pots and Pans

A great saint said God could be found amidst the pots and pans.  I thought I understood what she meant until I realized I am the pot.

 

The dinner fails.

The pot sits too long alone.

Unscrubbed, scorched,

Ruined.

 

Hands take it up,

Fill it with warming water,

Soothing soap,

Set it aside to soak.

 

Time passes.

 

The pot poured out,

Residue drains,

Hands begin to scrub,

Harsh steel wool.

 

Time passes.

 

Water rinses,

Harsh splinters slide away.

Spots fewer but

Stubborn, stuck.

 

Time passes.

 

Hands determined,

Pot can be cleansed,

Useful again,

No matter what.

 

Time passes.

 

Soothing soak,

Bliss of being still,

Soap and water working,

Pot unaware.

 

Time passes.

 

Taken up again,

New water, same soap,

Same hands.

Steel wool only on spots.

 

Time passes.

 

Pot has shiny places now.

Rinse and rinse again.

Spots grow smaller,

These most stubborn.

 

Time passes.

 

Hands keep working,

Scrub, rinse, soak.

Pot will be useable,

Scrubber knows.

 

Time passes.

 

Steel wool put aside,

Shine never marred.

Some spots remain,

Accepted for now.

 

Time is future.

 

Rinsed, dried, back with others.

Dinners will be new,

Pot used again,

Hands ready to cleanse.

 

 

“Let us fall into the hands of the Lord

and not into the hands of men,

For equal to his majesty

is the mercy that he shows.”

Sirach 2:18 NAB

Peace.

 

 

 

 

I have thought (again) for some time that I would not be moved to write anymore.

 

It has been a time of being very quiet inside in terms of words.  Yet, it has also been a time of invitation, learning and, though it might seem surprising in the midst of that, turmoil.

 

For now, for today at least, I’d like to share just one thing – a thing that came to me yesterday.  It’s a thing I’ve written about in one way or another before, and so one might think I would not have found it a compelling experience, but it seems I do not truly learn the lessons given to me and must be reminded.  I make no claim to being the brightest bulb in the fixture!

 

So for those of you who do me the honor of reading my words, try to keep the “Well, DUH!” reactions to a low roar – I’m recovering from two migraine monster attacks in one day and I really don’t want to wake that guy up again, he’s lousy company ;-)

 

Yesterday, I was absolutely determined to work on my pottery.  I get to feeling sorry for myself for, as I think of it, “losing” so many days.  Yes, I know, another lesson there, but one to speak of another day.

 

So, even though I knew a migraine was coming on, I took the pill that sometimes aborts it and began to work.  My goal was to do just a couple of small pieces, knowing I would be even more foolish if I tried to move more than a few ounces of clay at a time.  Between the migraine, the medicine, and my arrogance, my rhythm of wheel speed and lifting of clay walls was off and the piece began to become misshapen.

 

Rhythm – speed – lift – control.

 

Suddenly the lesson was there, refusing to be ignored.  When things get out of control (and we all know that’s going to happen) SLOW DOWN!

 

It’s not only okay, it’s essential.

 

Clay and life – they only form as they should when I cease to fight for control and lose myself to the rhythms and the silence that is deeper than mere absence of sound.

 

The lessons of the wheel are lessons of my life.

http://mycfslife.wordpress.com/2010/11/01/in-the-silence-of-the-wheel/

 

Peace.

Quiet roots, hidden life

 Peace.

The Colors of Adapting

Once again time and circumstance have slowly come together and insisted on words.  I know, I’ve surely spoken and written enough words for several lifetimes already, but here I go again.

 

It seems to me that all living things adapt constantly or don’t survive.  Living things must adapt to weather, to availability of food, to good things, to bad things, to innumerable things.

 

We who are chronically ill are certainly not unusual in that respect.  What may be unusual about us is that we agonize, beat ourselves up, and often tend to believe that we are somehow guilty, have some sort of character flaw, or have given up if we adapt to the changes our health brings before us.

 

Okay, I’ll stop using the royal “we” and refer to myself – it’s me, I admit it – I’m guilty of all of the above and then some; every single day.  But, after 21+ years of this disease, I’ve been confronted in a new way with a basic truth.

 

How well, and in what ways, I adapt affects me, people close to me and even total strangers.

 

Now, as I said, I’ve been living with this thing for 21+ years.  I’ve certainly adapted in many ways.  Some are obvious; at the best of times I use a shower stool, a cane, and if I need to go to a big place, a wheelchair.  None of those adaptations were easy when I first made them.  None of them are easy today – especially that wheelchair.

 

I’ve adapted in ways that are not obvious, too.  Not all of them are good.

 

Because I’ve had great difficulty standing unsupported for more than a very short time since the onset of this disease, I learned of necessity to adapt – hence the shower stool, cane and wheelchair.  Sometimes I still went out to small places on my own, our little library or drug store, but when confronted with a line (queue), I became, then and now, quickly desperate to sit and have left the merchandise behind rather than sit on the floor drawing attention or risk meeting the tiles in an even more attention-getting way.  Leaning hard on my cane, angled so I could rest back against it, was helpful only some of the time and never without a dramatic reduction in stamina.  I gave myself credit for strength of will, though, oh boy – am I tough! And wasn’t that the most important thing – toughing it out?  Applause, please, for the superwoman among us!

 

In the false pride of my so-called toughness, in the self-flagellation that did not come from truth, balance or any good thing, I did everyone a disservice, even strangers.  I know this because of what happened when I began to see what I must do.

 

About a month ago, I was forced to face facts.  I can’t do it.  I can’t go even to a small place and not have a place to sit down.  It’s not a case of wanting to sit – it’s need, and need it right now! I can no longer get away with leaning over a shopping cart, with self-talk to hold on for just another minute.   I can walk – some of the time – what I can’t do is predict or plan. My ability to stand can change in the blink of an eye.  Yet I want and need to walk when I can and I want freedom to do what I can on my own.  I am, after all, tough!  I am tough enough to accept reality…tough enough to adapt.

 

And so I obtained what will help me when the cane is not enough, the wheelchair is too much and what has, in turn, further opened my eyes, thanks to a stranger’s reaction.

 

More important than the “what” is the opening of my eyes.  A stranger saw me using what I am calling The Gizmo.  She gently asked if I get tired.  I got nervous that she was going to ask more but when I said yes, she began to tell me how much she wishes her friend would use one, how much easier life would be for her friend and for all those who take care of her.  She wasn’t asking in order to pry, she needed to talk about her friend – and I needed to hear!

 

Looking at The Gizmo rather longingly, she went on to say that her friend simply refuses to use “one of those.”  Anyone watching this woman would have been able to see how she ached for her friend – for the loss of freedom her friend is enduring and for those who take on the extra duties she cannot perform because “she won’t use one of those.”  Perhaps she’ll talk to her friend about it again, having heard me say that it has already brought back freedom I thought was gone forever.  Perhaps my public use of it has helped someone other than myself and my husband.  What a great gift to me, that thought!

 

We affect others, all of us, whether we are aware of it or not – whether it is seeing or simply allowing ourselves to be seen – adapting, living, continuing.  We aren’t just adapting for ourselves!

 

When I acquired The Gizmo, I was unhappy at its original name, bright color, and the prominent sticker that could not be removed and proclaimed me “invalid.”  I am neither invalid nor in-valid.  I renamed it and covered that sticker with some that reflect things I enjoy.  When I took the deep breath of courage and used it the world did not stop, staring and pointing, and I was able to enjoy a small outing as I have not done in many years.

 

And on top of it all, thanks to the blessing of a stranger’s wisdom, I have seen another way to be useful.

 

And so I present to you The Gizmo, personal helper, instrument of learning, and one of the colors of adapting.

Gaining freedom - gaining wisdom

 

Peace.

 

 

Happy New Year!

May your new year and all your days be blessed!

Peace.

Doubting Usefulness?

Recently, I read something which moved me so deeply that I contacted the author and asked permission to post it here.  Receiving a resounding “Yes!… for His glory!” I post the following – may it inspire all who struggle.

Peace.

 

From her book, Wow God by Sister Francis Clare, S.S.N.D. :

 

I will open for you every door I want

and close those I do not want . . .

 

When you are beset by doubts, know that

I am still here. These plans are My plans,

not yours. You’ve asked to be used by

Me and I’ve told you that I will use you.

The plan is Mine to work out. I’ve not

given the plan to you.

 

I’m only asking you to be My tool. The

hammer does not know what the

carpenter is doing. It only follows the

hand of the carpenter. I will pick you up

and I will lay you down. When I need

you I will use you. I know what I am

doing. I know what I am building. All I

ask is that you be on hand when I need

you.

 

Because I have called you a hammer, do

not think that I despise you. A carpenter

loves his tools and the more he loves

them, the better he handles them and the

better work they will do for him.

 

I have many tools. They are arrayed

before Me and I pick the one I need. Be

content to lie still if I do not need you,

for I know where you are and I will pick

you up when I need you.

 

 

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